The impact of tuberculosis (TB) on a person’s life can be huge and lasting. The experiences and expertise of TB survivors is crucial to our understanding of not only how to treat TB, but also what the TB community should expect post-disease, and what support should be provided for them.
‘Life After TB – a conversation about the neglected part of the emergency’ will shed light on this neglected area of TB care. The session will not only be livestreamed but organisers want as many TB survivors, doctors, nurses and advocates as possible to get involved via The Union’s @UnionConference Twitter feed, before, during and after the session itself.
Chaired by Dr Grania Brigden, Director of TB for The Union, the session will see panellists discuss key aspects of life after TB as prompted by their own experiences. The panellists will answer questions, and discuss thoughts and ideas shared with them via social media.
Dr Brigden and the panellists have endeavoured to ensure the session is as inclusive and accessible as possible, and encourage interaction via social media. She says:
“We want you to tell us what you would like the panel to discuss. Calling all TB survivors – please tweet us your ideas, thoughts and questions to @UnionConference. And don’t forget to use the #lifeafterTB hashtag please.
“If you aren’t able to attend in person in Hyderabad, please join us remotely by watching the session as we livestream it on our YouTube channel youtube.com/TheUnionNGO
“And please do tweet us during the session itself. We know that there are many people who would like to be involved who cannot attend the session itself. Technology is on our side and our aim is to use it to break down as many barriers as we can.”
TB survivor and activist Ingrid Schoeman. Ingrid developed drug-resistant TB while working as a dietitian in public hospitals in South Africa. Today Ingrid is a TB advocate and a member of TB Proof, a diverse TB advocacy organisation passionate about providing platforms where TB affected communities can contribute to improving TB prevention and quality of care.
Dr Thato Mosidi of the University of Cape Town, School of Public Health and Family Medicine. A survivor of extensively drug-resistant TB, Thato is also a member of the TB Proof advocacy group.
Kevin Mortimer, Professor of Respiratory Medicine at the Liverpool School of Tropical Medicine, an Honorary Consultant at Aintree University Hospital NHS Foundation Trust and Director of Lung Health for The Union.
Dr Brian Allwood, a consultant pulmonologist in the Division of Pulmonology at the Stellenbosch University and Tygerberg Hospital.
Dr Jamilah Meghji, a respiratory physician at St Mary’s Hospital, Imperial College, London, and Medical Research Council funded Fellow at the Liverpool School of Tropical Medicine.
The session, ‘Life After TB – a conversation about the neglected part of the emergency’ will take place in the Community Connect Session Room at the 50th Union World Conference on Lung Health on Friday 1 November from 15.30-17.00 Indian Standard Time (IST). Livestream the session at youtube.com/TheUnionNGO and use the hashtag #lifeafterTB to join the conversation.